Growth Hormone....the Results

Finally got those much anticipated results from that horrid growth-stim test.

Growth hormone is low. Not just a little low. Significantly low.

I really should've seen it coming, but so many doctors have assured me that Kasia's size is a result of those crazy chromosomes. Small and that's all.

Seems there's more to the story.







The bone age x-ray told us that at 4 years old, her bones were the size of a 2 year old. Still, I was assured that she could have a "constitutional delay" in her growth or that perhaps she was just destined to be small statured.

To everyone's great surprise, the bloodwork said otherwise.

Hmmmm......

• Small for age..... check
• Delayed bone age..... check
• Wispy hair.... check
• High forehead.... check
• Weak muscle tone.... check
• Lean figure but with a little ring of chubb around the midsection.... check

Doesn't it make you wonder how all the boxes in the symptoms column can be checked off and yet a doctor will still insist that the chromosome issue is to blame?


Now I've got yet another one of those big Life's-Not-Fair decisions to make. Give chemo or cross my fingers and pray to whatever God is listening that my child's cancer won't come back? Give meds to control seizures or wait and see while racking up frequent flyer miles in the local ambulance? Choose a mainstream class or a special needs one? Catholic or Public?


Give growth hormone or don't?