It's also one of the last things I hear before she goes to sleep. I swear she must dream about them.
Don't know The Wiggles? Here's what you're missing:
Tuesday, November 17, 2009
Get Ready to Wiggle!
Kasia is currently OBSESSED with The Wiggles. From even before her little toes hit the floor in the morning, she is saying this to me:
Thursday, November 12, 2009
Growth Hormone....the Results
Finally got those much anticipated results from that horrid growth-stim test.
Growth hormone is low. Not just a little low. Significantly low.
I really should've seen it coming, but so many doctors have assured me that Kasia's size is a result of those crazy chromosomes. Small and that's all.
Seems there's more to the story.
The bone age x-ray told us that at 4 years old, her bones were the size of a 2 year old. Still, I was assured that she could have a "constitutional delay" in her growth or that perhaps she was just destined to be small statured.
To everyone's great surprise, the bloodwork said otherwise.
Hmmmm......
Doesn't it make you wonder how all the boxes in the symptoms column can be checked off and yet a doctor will still insist that the chromosome issue is to blame?
Now I've got yet another one of those big Life's-Not-Fair decisions to make. Give chemo or cross my fingers and pray to whatever God is listening that my child's cancer won't come back? Give meds to control seizures or wait and see while racking up frequent flyer miles in the local ambulance? Choose a mainstream class or a special needs one? Catholic or Public?
Give growth hormone or don't?
Growth hormone is low. Not just a little low. Significantly low.
I really should've seen it coming, but so many doctors have assured me that Kasia's size is a result of those crazy chromosomes. Small and that's all.
Seems there's more to the story.
The bone age x-ray told us that at 4 years old, her bones were the size of a 2 year old. Still, I was assured that she could have a "constitutional delay" in her growth or that perhaps she was just destined to be small statured.
To everyone's great surprise, the bloodwork said otherwise.
Hmmmm......
- Small for age..... check
- Delayed bone age..... check
- Wispy hair.... check
- High forehead.... check
- Weak muscle tone.... check
- Lean figure but with a little ring of chubb around the midsection.... check
Doesn't it make you wonder how all the boxes in the symptoms column can be checked off and yet a doctor will still insist that the chromosome issue is to blame?
Now I've got yet another one of those big Life's-Not-Fair decisions to make. Give chemo or cross my fingers and pray to whatever God is listening that my child's cancer won't come back? Give meds to control seizures or wait and see while racking up frequent flyer miles in the local ambulance? Choose a mainstream class or a special needs one? Catholic or Public?
Give growth hormone or don't?
Sunday, November 1, 2009
Halloween Fun!
Even H1N1 couldn't put a damper on our Halloween fun, but the cold & rainy weather almost did. Luckily Kasia was toasty warm in her chicken (or is it a rooster?) costume. Regardless, she felt it apropos to "quack quack" her way along as she trick or treated.
"Hmmm, this looks interesting...."
When we got back home, she changed into her witch costume to help hand out treats - the most fun she had all night!
"Who wants candy?!"
"Uh, a little help??"
Making a tower with boxes of gumdrops, her OT would be so proud!
Doing her own Thriller dance.
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